The next day she was a little better. Then the results were in - it was MLD. Emily gradually stabilized and came home 3 weeks later. For a while she was in so much pain. Her muscles went into spasm, she couldn't bend her arms or legs and we were in and out of hospital until we got to Birmingham Children's Hospital. There they changed her meds which stopped the spasms totally.

She stabilized again, and came home December 2nd, 2003 and is still home now.

So here we are, Emily has so far defied the odds. I read of other children via the MLD foundation and their stories make me cry, but then we see a glimmer of hope here and there.......and of course, now I have met Bethanys Hope Foundation, and heard of your research lab (thanks Patti for putting me in touch) and I am daring to hope that just maybe we can have another chance.....

Speak to you soon ,
Helen Hart